European Organisation for Rare Diseases

Crown Custodian Margareta says increased awareness of rare diseases might help

Custodian of the Romanian Crown Margareta told a Rare Disease Day event hosted by Elisabeta Palace that by extending her patronage to the National Alliance for Rare Diseases in Romania she wanted to help sufferers of such diseases get treatment. "I understand very well what is happening in our country and in the world.

Novartis wins EURORDIS Company Award for Innovation, in recognition of long-standing track record in developing medicines for rare diseases

"We are delighted to have been recognised by EURORDIS and the rare disease community for our work in advancing the treatment of rare diseases in Europe and around the world.